Went to the Doctor again yesterday. The ultrasound was very positive. So far, her ventricles are measuring the left larger than the right. They are both still in the "normal" range but still bigger than they are supposed to be. Her head is measuring two weeks behind, but it has consistently been that way since the beginning. Still cannot view the cerebellum but they are reassuring me it is there, this condition is called Arnold Chiari Malformation, and goes along with Spina Bifida. The spinal cord is pulling her cerebellum down due to the open lesion in her spine. From the research I have done, she will have very minimal side affects from this condition. The docs say when they do her closer surgery after time everything should go back to were it is supposed to, doesn't always happen, but we hope for the best. I am now 30 weeks and cannot believe how close I am getting to her arrival. I am getting more and more uncomfortable. This being my fourth pregnancy and my body is done!! My emotions have been better lately as they seem to fluctuate with wether or not we get good news from the doctors. Since we have been getting good news lately or nothing changing my emotions have been stable.
On another note, I am a member of a website it is on the Baby Center website called Spina Bifida Kids. Each member is a parent of or going to be a parent of a child with Spina Bifida, I am greatly humbled and feel like these women have been there for me since day one with a positive uplift with each posting I make about my worries, concerns or questions about Spina Bifida. My heart goes out to the women who are expecting and are told there baby has SB, like myself I was not given very good news and was led to belive my child would or could possible be a vegetable. Or be mentally retarded. I was given the option many times to terminate, I myself obviously did not but how many women out there are not informed and educated about SB and are led to belive they have to terminate. When inside a precious child is ok, mentally but yes will live with SB. SB is not a death sentence, it is more of a physical disability than mental. I don't have all the answers I still have a long road ahead of me as far as what to expect with our precious one. I have made this decision and what ever the outcome I will live with. But i made my decision based on facts, research , and then my heart. Some women are not given that option, and again my heart goes out to you....
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